Lung CT Scans May Help Predict Mortality Risk of IPF Patients
Lung evaluations via a CT scan might help predict the mortality risk in idiopathic pulmonary fibrosis (IPF) patients more accurately than...
Claire’s Place Foundation Launches COVID-19 Emergency Fund for People with Cystic Fibrosis
Claire’s Place Foundation medical expert recommends all with cystic fibrosis self-quarantine immediately Claire’s Place Foundation, a...
This new treatment helps 90% of cystic fibrosis patients breathe better
Vertex’s Trikafta was the second-fastest FDA approval in history, and could help some 27,000 patients. In October 2019, Vertex...
This 3-drug combo can improve lungs affected by cystic fibrosis
A phase three clinical trial conducted by UT Southwestern led to the conclusion that a three-drug blend could enhance lung functions and...
Viral Respiratory Tract Infections in Young CF Children Usually Mild, Study Found
Viral respiratory tract infections in young children with cystic fibrosis tend to be mild and not require hospitalization, a study found....
New Clinical Tool Predicts 1- and 2-Year Mortality in Cystic Fibrosis
Researchers in Canada have developed a novel clinical tool that uses patients’ overall health status and the risk for intermittent shock...
Lower airway infection prevalence changing in children with cystic fibrosis
The prevalence of lower airway infections with Pseudomonas aeruginosa, Staphylococcus aureus and Haemophilus influenzae among young...
New Intra-Nasal Imaging to Examine Airways in Cystic Fibrosis Patients
A simple, minimally invasive new tool for observing differences in the nasal airways of cystic fibrosis patients in vivo at a cellular...
Better Access to Relizorb for Patients on Feeding Tubes Advocated by Doctors and Dietitians
More than 60 cystic fibrosis experts strongly support Relizorb being made available to CF patients on tube feeding, pushing in a...
‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy
People with rare diseases know that the right government policies can make a big difference in the quality of their own lives, and those...
