December - 2020 2/2

MECFA Blog

Study Recommends Longer Rest Interval Between 6-min Walk Tests for Non-CF Bronchiectasis Patients

Two consecutive six-minute walk tests (6MWT) — which measure the distance a patient can walk in that time to assess their exercise...

Study Identifies Risk Factors of Malnutrition in Children With CF

Children with cystic fibrosis (CF) who are older, thinner, or have worse lung function may be at increased risk of malnutrition, a study...

Moscow Scientists Edge Closer To A Breakthrough For Cystic Fibrosis

Scientists at Moscow’s Bochkov Medical Genetic Research Center have successfully corrected a mutation of the CFTR gene, which causes...

Welcome to the team

MECFA welcomes Dr. Susanna A. McColley to our team to lead the MECFA Diagnostic Program. Susanna A. McColley, MD is Associate Chief...

Pegylation Provides Long‐acting Version of Dornase Alfa for CF Treatment

A modified version of Pulmozyme (dornase alfa), a widely-used cystic fibrosis (CF) therapy, lasts longer and reduces the need for...

Disease Duration, Flare-ups Affect Mental Health of Non-CF Bronchiectasis Patients, Study Finds

VERTEX’S CF BLOCKBUSTER TRIKAFTA EFFECTIVE IN KIDS 6 TO 11 YEARS OF AGE

A case for improved carrier screening

Vertex to Seek Expanded FDA Approval for Trikafta After Positive Child Safety Data

Vertex’s Kaftrio approved for use in Europe and made accessible on the NHS

Age May Affect Outcomes in Lung Transplant Recipients With Cystic Fibrosis

CFF Funding Will Further ContraFect’s Research Into Alternative for Antibiotics

The search for molecular glue in targeted disease control

Vest Therapy Lowers Risk of Hospitalization in Non-CF Bronchiectasis, Study Says

Harvard is working with Boston hospitals to test existing cystic fibrosis drug to help coronavirus p

Annual Scientific Conference

The Heartbreaking Reality of Cystic Fibrosis Care in Iraq: A Mother's Plea for Help

MECFA supports CF patients in Tunisia

International disparities in diagnosis and treatment access for cystic fibrosis

Philip Hopewell Prize for Global Respiratory Health Research

South Africans take on big pharma for access to ‘miracle’ cystic fibrosis drug

MECFA launches campaign to help people with CF in Gaza and the West Bank, Palestine

Ministry of Health unveils national electronic registry for cystic fibrosis patients

MECFA Jordan Project report

Conquering chronic lung infection in cystic fibrosis patients